Update - Kathleen

Busy day today! It started with Cale being very active again, at one point I was reaching for his left hand that was about to pull out one of his tubes and then with his right hand (within seconds) reaches to the IV on his left arm and yanks it out! It was so fast! This was also while he was busy pulling at his trach (which he's gotten really good at!) and pulling off his leads that monitor him. It gets crazy with him! haha! Later on a nurse came to start another IV and Cale was so angry. It took me, Bethany Lotz, and Melody Bechard to hold him down while the nurse was trying to get it in and it ended up taking several tries with three different nurses. The first try, I was so excited because Cale was reacting! It was so great to see the fight in him. He even lifted his head up today, which was a first! The second time, I was feeling like they just needed to get it done, and the third time I was having a really hard time watching him struggle so much. Then when she finally got it and I saw blood, I instantly felt dizzy and sick to my stomach. My first reaction was to push away the two nurses! Finally, it was a done deal and we were able to leave for lunch with queasy tummies :)

I received a call from WakeMed today and they don't want to transfer Cale until everything is stable with him. He's not having the seizures but he still has a really high heart rate. So far the doctors aren't really sure whats going on, they've tried a few different things. Today seemed to be better for the most part, but for awhile it did rise again. They did an EKG to see if that showed anything. Hopefully we'll find out tomorrow. So far still looks like Monday!

My flesh and heart may fail, but God is the strength of my heart and my portion forever. Psalm 73:26