I didn't get to be at the hospital for most of the day. I had to take a trip to Ft. Bragg to take care of a couple things. I had thought it was going to be a simple and fairly quick trip, but ended up taking most of the day. All I can say about the trip is, there is a reason there are blonde jokes...
Before I left this morning, they were getting Cale ready for the day. He's been really good about showing what he wants. When OT first asked him if he wanted to brush his teeth, Cale nodded "no". Carolyn (OT) put the tooth brush down, and then asked Cale if he wanted to get washed up. He didn't want to take the wash cloth, but he let OT wash, and then she put deodorant on one side, and Cale did the other. Next, she gave him his shirt to put on, instead he rolled it in a ball, then set it to the side. At that point, he let them know he wanted his teeth brushed by putting the tooth brush in his mouth. He didn't move it, but again, let OT do it. Once that was done, she asked about the shirt again, and Cale helped put it on. He was willing to let everything happen, as long as it was the order he wanted.
When I got back this evening, Cale let me give him a hug, but then for the few hours I spent there, he had his whole body under the sheet the whole time. Every time I would try to go under with him, he'd quickly pull it down. I asked if I could join him in his bubble...there was no response. I asked if he would come out and let me say good bye...he pulled it tighter around him. He did pray with me though :)
It's a fun and interesting stage we're entering into. He makes me laugh so much through the day, but at the same time, I look at him, and I can't help but think about the man that he was. How did this man, an Intel Analyst for the Army, end up here? While I look at the website for the facility we're going to, I get so excited for all the possibilities! All the staff at the hospital are all so excited too! It's a big deal. I just know we still have so long to go. I know that the Lord is going to help me rise out of bed every morning to face each day. There will continue to be hard days and easy days, good days and bad days, and He WILL sustain me through them all!
Psalm 3: 3-5 But you are a shield around me, O Lord; you bestow glory on me
and lift up my head. To the Lord I cry aloud, and he answers me from his
holy hill. I lie down and sleep; I wake again for the Lord sustains me.