Wednesday, June 15, 2011

A kayaking we will go!

This is what we did today...

{Cale was silly}



{then he climbed in a kayak?!}




{and then I joined him!}




{Off we went!}


The morning was real rough. In fact, I told Cale that he woke up on the wrong side of the bed, so he should go back to bed and try again-didn't work. I was unsure of how the outing was going to go, but I was determined to give it a try. Well, we had fun! I don’t think he enjoyed it as much as he might have on another day, but he did have fun.

The rest of the afternoon was going really great until it was time for radiation. He made it very clear that he didn’t want to go, be there, or ever see that place again. Thankfully, I was able to get him to the car…

It was doctor day so we had to stay longer. So far, there haven’t been any problems to report, but today I had a few things. Cale is really starting to feel the side effects (did I write about this yet?). It’s making me so sad! His nose is irritating him so much, which they expected to happen, but he doesn’t understand what’s going on or why it’s irritating him. So…he scratches. With him picking/scratching constantly, his nose bleeds. It hurts and then he picks more because of the dried blood…this is causing more bleeding and more irritation.

Also, the radiation is hitting is palette. Boo! This is causing sores in his mouth that hurt. It doesn’t seem to be bothering him when he eats, but he has been complaining that it hurts really badly.

He has had some weight loss…so we’re keeping an eye on that too!

So…of course with the issues that are coming, there are things we need to do for them. My heart was sinking with every word the resident was saying…the nose rinse. Cale had to do this when he had surgery on his nose at Palo Alto. I don’t know if you remember me writing about these terrible rinses or not; they are Cale’s enemy. Mine too. He hates them…really, really hates them. He would never let the nurses do them and they would always end up with screaming and hitting. I can’t blame him, I’m sure they’re plain awful. Now that he’s even more aware of things, I’m not sure if it will go better than before, or be even worse. I’m dreading the thought.

Also, we have to do two different mouth rinses on top of his special mouth wash. Again, he’s not going to be thrilled. All of the exciting news was followed with a fairly large blow up from him. On top of the misery of the situation, I just hate that he has to go through all of this! I really hate that with his brain injury and with all the confusion, and now radiation and being away from home-he has to do these things on top of it. Ugg.

I was trying to remember everything the Lord has been working on my heart the last few days. I could imagine my brain having all of these filing cabinets and in a rampage, I was digging, tossing, grabbing, ripping, and sorting.

Jesus I trust you.

When we got back to the hotel, Cale laid down for a nap. While he was sleeping, I did a few things I needed to get done for this weekend (more on that later). When he woke up, we ended up having a great evening!!! Thank you for all of you that were praying!

We had fun laughing and being silly. Cale helped me pick out some outfits and he had a blast watching baseball on TV! He NEVER watches baseball on TV, not even before the accident, but he sure did tonight! He followed it, cheered when there was something good, and made sad noises when it was bad. I think after watching the Mariners play, he likes it now? Haha!

Once we hit night time and he first got in bed, we went downhill again. He’s currently still awake and miserable. I’m really grateful that it’s not focused at me for the moment!

Two conversations we’ve had today:

We were standing outside of the hospital waiting for our car, and I could feel the weight of dreading what was to come. “I hate it. I’m so sorry about this. I hate that you have to go through all of this. I’m so sorry. “Were the words on the tip of my tongue, and out they came. Cale lifted my chin and so sweetly said, “It’s not your fault.” And then he wrapped me in a big hug.

Tonight when he was very first climbing into bed, this is what started his change of mood.

“I don’t like this, this, what is this?” K: Radiation C: “Why me? Why do I have to do this?” I talked with him about how maybe because God trusted him and allowed it in his life because God knew that he would be able to go through it, and react in a way that would reflect His love and grace. Cale without hesitation said, “I deny.”
Poor guy.

I’m so thankful that out of such a hard day, we had fun kayaking AND had such a wonderful joy-filled evening. Gift from Jesus!

Side note…

I’ve mentioned before that I had gone to Malawi with my friend Melissa for 6 months. Well, she just showed me this video which is of the place that we had gone to! Cale and I watched this right before I started typing and OH MY! Just what I needed!!! Tears…so many tears, but good ones! So many treasured memories! A lot of the little kiddos you see in this video are the same ones that I was able to love like crazy on 5 years ago! Yikes…5 years!



I told myself this was going to be a short post, but...uh... oops!

Here's the prayer and fasting list! If you've been meaning to choose a time, please do so by tomorrow night! I may not be able to update this weekend...!

Monday, June 20
8am- Marion
9am- Sandi
10am- Bonnie, Krystal, Hannah, and Janis
11am- Amanda
12pm- Macy and Mel
1pm-Nikki&Temarie&Grandma
2pm- Nikki
3pm- Nikk &Juan
4pm
5pm- Loriel
6pm
7pm- Deb
8pm- Kathy
9pm- Sandra& Megan

Tuesday, June 21
8am- Phyllis
9am- Sandi
10am- Matthew
11am- Matthew
12pm-
1pm- Temarie, Grandma, Janis, Tiffany
2pm
3pm- Juan
4pm
5pm- Loriel
6pm
7pm- Deb
8pm- Susan&Kathy
9pm- Megan

Wednesday, June 22
8am- Alyssa
9am- Sandi
10am-Hannah
11am
12pm
1pm- Temarie& Grandma, and Tiffany
2pm
3pm- Juan
4pm- Deb
5pm- Mama
6pm- Mama
7pm- Mama
8pm- Susan&Kathy
9pm- Sandra &Megan

Thursday, June 23
8am- Jean
9am- Sandi & Jean
10am- Jean
11am- Jean
12pm-
1pm- Temarie, Grandma, Janis
2pm
3pm- Juan
4pm
5pm-Loriel
6pm
7pm- Kay&Deb
8pm-Kathy
9pm- Megan

Friday, June 24
8am- Phyllis
9am- Sandi
10am-
11am- Wanda
12pm
1pm- Temarie&Grandma
2pm
3pm- Juan
4pm- Janis
5pm
6pm
7pm- Deb
8pm-Kathy
9pm- Megan

5 comments:

  1. Hey girl, put me down for Friday June 24 from 10 AM to 6 PM. Sorry to let you know so late... thinking of you guys and praying for you!

    ReplyDelete
  2. Sometimes all I can say is "JESUS", in certain situations. That's enough, though. There is all power in that name. I am so glad you had a fun time in the kayak, and a good evening. I don't know why Father is giving you all those rough moments, BUT do know He is with you in a special way during those times. I trust Him to reveal Himself and show you more of Himself than you ever imagined. It won't be until we get home (heaven), maybe , that you fully understand, BUT Father know why, and that's enough. I would ask Father to let me go through all that for you, but then you wouldn't receive the gifts He has for you that are wrapped up in that package. I love you very much, FATHER LOVES YOU MORE!! Marion I am excited for yur trip. It's going to be a blast!!!!!!!!!

    ReplyDelete
  3. I watched the video after everything else. HOW PRECIOUS. What a wonderful experience. Too, sometimes I just need to cry, it's interesting what Father uses to give me that opportunity. Kathleen, you are wonderful. You walk just where Father puts you, you don't quite. Father shines through you. He is so proud of you. He nearly busts His buttons, saying Look, see Kathleen, She is doing what I have planned, and she is doing so good. HUGS, Marion

    ReplyDelete
  4. Monday 4
    Tuesday 4
    Wednesday 12
    Thursday 12
    Friday 12
    Scott Family

    ReplyDelete
  5. casey smith6/16/11, 8:19 PM

    Put me down for noon on tue and thur....prayers are going up for y'all all the time ;)

    ReplyDelete

Please included at least your first name and know that we are reviewing each comment so it may take up to 12 hours to post. Thank you all for your constant encouragement and prayers.