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Monday, March 15, 2010

Update - Kathy

We were able to speak with the doctor this morning about Cale still having the tremors, even though he is getting double the dosage of seizure medicine. They started him on another medication in hopes to control this completely. It will also control his blood pressure, so they quit giving him a separate medicine for that. His heart rate was elevated again today but since his new medicine is suppose to lower blood pressure it also lowered his heart rate. His left eye has been pretty red the past couple of days and today it seems worse. It is swollen and had gunk in it so he is now getting antibiotic drops every 4 hours. On a good note-Cale is moving his head quite a bit more and was very active up until about 4 p.m. Probably about the time his new medicine kicked in and shortly after he was given pain medicine. Cale is always pulling on his leads and oxygen tube and just seems pretty fidgety so Kathleen got him a small squishy ball to hang on to, a soft lamb and a mini skateboard. He really likes the ball and it seems to give him something to do with his hands. It's really great to watch him pick it up every time he drops it. Every day he is becoming more aware of "different feelings" like earlier we saw him scratching his nose. When he's trembling he tries to stop it on his own by holding the area.


  1. Let me just tell you that I have lived with epilepsy for 12 years and they are constantly playing with my med dosage. And with the type of medicine that they give me. I won't say it's no big deal especially in Cale's fragile state but I am saying that please be assured that this is one of the smaller things. We pray for all of you several times a day Kathy and we know that God is always in control . Please be restful tonight and always. In Jesus,
    Charlie and Jean

  2. I just wanted to stop by this bright sunny day and leave a basket of love and hope at your door.
    You are always in our thoughts...<><


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