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Thursday, March 11, 2010

Update - Kahtleen

Today has some bummer but also helpful news. The results from the EEG done yesterday show that Cale is having seizures. They are pretty constant some days, which makes me so sad for him. The Nurse Practitioner said that he's probably in a postictal phase a lot, which is basically a resting period that happens after people have seizures. This explains some things I've been noticing, like how he hasn't been responding to commands as much. The helpful part of the news is that now we know he's having seizures and they can start treating it like they need to. I asked about the long term effects, wondering if this was going to be a permanent battle, and right now they said there's no way to know at this point. Eventually, when the seizures stop completely, they can try weening him off the meds and hopefully the seizures will be gone. She said it could be months or even years, they just don't know. It's been so hard for me to watch the tremors, especially when they're in his face because I can't do anything. All along I was really hoping it would end up being an easy fix and no big deal. Now that we do know, hopefully the medication will kick in quickly and the tremors will be no more!

His heart rate has been a little high today. This afternoon the nurse gave him some pain medication, but even now, his heart rate is 127. It's been going up and down though all day. He's been very figidity too and just seems to be bored. Every time PT comes in Cale falls asleep right away, so today at one point when his heart rate was at 130 I decided to do some range of motion with his arms just to see if he would relax like he does with PT and he did! Haha! As soon as I started working with his arms, his heart rate dropped! It's really funny that he falls asleep during his work out :) I'm just not as tough as the army I guess!

Here is a picture Rachel took yesterday while I was calming Cale down at one point. His hand is propped on his chin like he's awake! He's been doing this a lot lately and I think it's so cute! :)


  1. Oh Kathleen. I just don't even know what to say anymore except that you are such an amazing source of strength for me. I love the picture. It looks like he is deep in thought. Hang in there sweetness. You are doing so good and you are so great and your faith is such an amazing , amazing thing to watch in action. We are here and praying and if you need ANYTHING please call.
    We love you.
    Charlie and Jean

  2. wow he looks so thin.

  3. What a beautiful picture Kathleen. You are in my prayers daily.

  4. celeste said the picture is gorgious.i dont know where she comes up with this stuff.she asks everyday how her uncle is doing.

  5. Tamara L. Host3/11/10, 8:11 PM

    Kathleen, Don't get discouraged...Cale is definitely healing...It's just another minor bump in your road...I have seen your strength and I can't tell you how proud of you I am...You haven't given up or fallen apart...I pray that Cale will wake up before your anniversary and be able to share that special day with you...There definitely is Power in Prayer...God Bless and keep you safe...

  6. I love the goatee! Do you think he will keep it? I'm still praying for you guys. Even though the news was kinda sucky I'm glad that the Doctors know whats going on so they can help. Love you miss you!

  7. I have to say that I 2nd what the Bensons said! And want to add that I know how tuff it is on you about the seizures and everything that goes with it. Our Andrew has them! Maybe it's not the same cuz Andrew is my son and not my husband. But it's still scary and you worry and the Dr. don't know if it will last forever or a few days or whatever. So to a point I can understand that part! God is so much bigger then this! I know you know that! If God can heal all 3 holes in our Abbiegail's heart He can and we pray WILL heal everything that is wrong with Cale!! I keep thinking that God didn't bring him this far to let go of him now! I know that God never lets you go! I'm just saying that I don't think that Cale's healing is going to stop here. Still praying!! And even after a month you both are still on my mind and heart all the time! I wish I was there with you right now! I'd give you a great big hug!! ok ok and some candy too! ;) we love you both so much!! Hang in there! And let me know if you need anything!! Love you! ~Tigger and John~


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