Today has some bummer but also helpful news. The results from the EEG done yesterday show that Cale is having seizures. They are pretty constant some days, which makes me so sad for him. The Nurse Practitioner said that he's probably in a postictal phase a lot, which is basically a resting period that happens after people have seizures. This explains some things I've been noticing, like how he hasn't been responding to commands as much. The helpful part of the news is that now we know he's having seizures and they can start treating it like they need to. I asked about the long term effects, wondering if this was going to be a permanent battle, and right now they said there's no way to know at this point. Eventually, when the seizures stop completely, they can try weening him off the meds and hopefully the seizures will be gone. She said it could be months or even years, they just don't know. It's been so hard for me to watch the tremors, especially when they're in his face because I can't do anything. All along I was really hoping it would end up being an easy fix and no big deal. Now that we do know, hopefully the medication will kick in quickly and the tremors will be no more!
His heart rate has been a little high today. This afternoon the nurse gave him some pain medication, but even now, his heart rate is 127. It's been going up and down though all day. He's been very figidity too and just seems to be bored. Every time PT comes in Cale falls asleep right away, so today at one point when his heart rate was at 130 I decided to do some range of motion with his arms just to see if he would relax like he does with PT and he did! Haha! As soon as I started working with his arms, his heart rate dropped! It's really funny that he falls asleep during his work out :) I'm just not as tough as the army I guess!
Here is a picture Rachel took yesterday while I was calming Cale down at one point. His hand is propped on his chin like he's awake! He's been doing this a lot lately and I think it's so cute! :)