Today Cale started out being very active this morning. He is still moving his left arm and leg a lot. Not so much the right side. His nurse told us when we came in this morning that he was constantly pulling on his leads and oxygen tube. The new thing for today was that he moved his head to the right. It has always fallen to the left on its own so it was great to see him try and move it in the opposite direction. He still has a slight tremor which starts a little while before the medicine is due. The doctor was informed and they will be deciding whether to up the dosage on what he is already taking or try some other medicine. Also, forgot to mention yesterday while he was wearing the valve that allows him to make sounds from his mouth, he did a heavy sigh. All of these may seem very small, but they are HUGE!!!!! Cale is still struggling at times with an elevated heart rate. Not for sure what's causing this. Maybe seizure activity, pain, don't know.
When I start to get a little discouraged, I look back at the very beginning and realize how far he has come already. I know my son will not let this get the best of him because he has never given up on anything until he masters it. He still has multitudes of people praying for him and that is so awesome. My sister Susan told me something that was very comforting the other day. She said that she knows that God has something big planned for Cale and we may not know what it is but it will be so much bigger and better than Cale had even planned for himself. I have always believed this, but it helps to be reminded when it has been a rough day. Thanks so much sis.