Sing to him, sing praise to him; tell of all his wonderful acts. Glory in his holy name; let the hearts of those who seek the LORD rejoice. Look to the LORD and his strength; seek his face always. 1 Chronicles 16:9-11
I love this verse. I love that I can sing praises to Him on the good days and the bad days. I love that God is continually doing amazing things! Everyday that we face, all the progress Cale makes, every bump in the road, the Lord gets the glory and I will rejoice in it! He is my strength, everyday, every minute! I will continue to seek His face always. Today I rejoice in another great day! All this good stuff can keep on coming! :)
The speech therapist is out of town, so for the rest of the week, there's a lady filling in. I didn't think Cale was going to do much with a new person, that's at least how it's been so far. Well, she asked questions and for almost every one, he nodded for yes or no and they were all the right answers! Then she tried ice chips, Cale chewed and swallowed the first couple times!
PT and OT walked with him today, they tried again without the brace. So far every time they try this, because of the calcium deposits in his joint causing so much pain, he immediately lifts his leg up. Susan (PT), figured out that if they get him walking fast enough, it would be less pressure for his left leg. The problem has been that, the right leg is the one he doesn't have much control over, so it's a slow process. I tried to put the video on here, but it wouldn't load. He was able to walk fairly quick and without the brace :)
Before lunch, there was time for Cale and I to sit outside. When we were leaving his room, I asked Cale if he would hold my phone for me. On my phone the camera button is on the side, he had found it, and was watching through the screen as we headed outside. Once out there, he started taking pictures! He had it on me for a while and then when I looked through all the pictures, he had taken this one :)
A couple things to pray for... On Sunday I noticed Cale had his hand over his left ear. He wouldn't put his hand down, so I asked the nurse about it. A doctor that was on call, took a look at it and he said there didn't seem to be anything wrong. At that point I wasn't sure if it was his ear, or just the left side of his head. This morning when they got him out of bed, he was doing it again. He didn't seem as bothered, so I didn't think much about it. Later this afternoon, we went back outside, and Cale had his hand up again, but this time his finger was in his ear. He wouldn't let me move his hand and he had a very distressed look on his face. They're supposed to be coming in to look again, and maybe figure out what's going on. He really looked like he was in a lot of pain...
I'm going through another wave with no sleep. It was kind of going on just a couple weeks ago, but then seemed to get better. It started up again this last week, really bad the last couple days. I've tried a few different things, and nothing seems to be helping. It must be starting to show because when PT and OT came in this morning they asked if I was not sleeping good. This time, I'm starting to get headaches which just makes the whole thing a little annoying. I know it'll pass though!
Also, Adam is having surgery tomorrow. He's already been through so much, and now another one. I've been thinking about Amy a lot today, my heart is really heavy for her. I'll try to give an update about how the surgery went as soon as I know something.
Thanks for praying!