The day was all jumbled up because Cale had another MRI done. Last time the meds they gave him didn't help him relax at all so through the whole thing, Cale was moving. This time, they upped the dose quite a bit so we're hoping it knocked him out enough ;) I should hear soon if it turned out good enough to get a plan going. I just want the darn thing gone! Poor Cale. We're all thinking that's why he's having such a hard time with certain mouth functions. He's trying really hard still!
At about 3:30pm, Patricia (ST) came in to see if Cale was ok to at least do a short session. The Nutritionist cut Cale's feeding from 720ml 4 times a day to 480ml 3 times a day. He's gained 20lbs since we've been here, which it's now been a month! He's still underweight for what he should be, but stuffing him with tube feed, isn't a very good way to gain his weight. They're also hoping this will give him more of an appetite to eat. Well, I think this afternoon he had two things helping him and I'm so excited because of it! First, the Ativan (med to calm him for the MRI) wasn't completely out of his system so he was still pretty relaxed, and also he was hungry, SO...Cale ate pudding! Lots of it! He went from 8 pretty small bites yesterday, to ALL of it! :)!!!! Patricia said she's hoping that it stays that way next week, and if so she will start giving him other stuff, which will lead to getting him on a diet of food!!! Yes! Yes! Oh yes! :)
If I had to choose my favorite pudding cup, out of all the pudding cups in the world, this one is it!
This evening when I was with Cale, I asked if he wanted to go outside for a while, and he shook his head "no", then I asked if he wanted to go to bed and he nodded his head "yes". I said "Ok, let's go to the sink and brush your teeth." Cale didn't want to go, even with me saying that before he would be able to lay down, his teeth needed to be cleaned first. We sat talking for a few minutes, and at one point I looked at him and said "I love you" and then Cale said "I love you"...!!!! It was with breath again and not very clear, BUT he tried, and this time I could make out more clear what he was trying to say. After some more tears and hugging, I told Cale he could do whatever he wanted! :) Later this evening he was on the phone with his mom and said "I love you" to her. Because it's just his breath, she wasn't able to hear so I took a little video. There's still no sound, but TJ is trying to help with it. As soon as we get the sound problem fixed, I'll get another video on!
A little encouraging message...
Hannah Hayner posted a comment on yesterday's post with a verse. Today I got a message on facebook that encouraged me so much!
Psalm 52:8 And I'm an olive tree, growing green in God's house. I trusted in the generous mercy of God then and now. 9 I thank you always that you went into action. And I'll STAY right here, your good name my hope, in company with your faithful friends.
This was her message...
heyyyy! so that Scripture i just posted on your blog made me smile, because i looked up olive tree, and one thing an olive symbolized was reproduction! hehe!
also, the promised land was fulllll of olive trees! yes!!!! you're headed for that promised land!
Caleb, we're headed for the promise land! Yeehaw!!! ;) I also happen to really enjoy the "reproduction" comment! Heehee!
A few specific things to be praying for:
* Continued healing for Cale's brain-the connecting would continue!
* Apraxia (look back to my "Apraxia is the Enemy" post)
* Bowel and Bladder control-This is my biggest frustration right now...I try so hard to not show it to Cale!
* Voice!!
* Swallowing-This we are already seeing! Pray for consistency.
* Perseveration- is the repetition of a particular response, such as a word, phrase, or gesture, despite the absence or cessation of a stimulus, usually caused by brain injury or other organic disorder-VERY much a wall we keep hitting...
* Endurance-Cale is working so hard every day and things that were nothing before, are so hard for him now. It's tough.
* Memory-Post-traumatic amnesia is one of the many things Cale is battling.
* Sleep for the wife :)(I know that many of you have been praying constantly for me, for this...thank you so much!)
* Focus-that for both of us, our focus would remain on Christ and not stray away. So far, with the Lord's help and all of your prayers we've been able to keep our eyes on things of the kingdom, and I don't want to loose that. God is bringing me so much closer to Himself every minute-yesterday was such an example of that! He's also drawing Cale and I together to Him, we had a very special moment reading scripture this evening!
That's a lot more than a few...but, what can I say?
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