Thank you SO incredibly much everyone for praying for me, encouraging me, and being willing to talk if I needed to. It's such a blessing to know when those really hard days come, I am not alone as far as people to turn to! Thank you!
I had a really great prayer time this morning, which is always a perfect way to start my day. :) When I got to the hospital, I was walking down the hall and saw Cale farther down. At first he didn't notice me with all the other people around, but as soon as he saw I was coming his way, both arms flew in the air, his face lit up, and he headed my way! So sweet! I gave him a huge hug and asked how his morning had been so far and he said "the morning was horrible.", "oh no!" "why?!" I asked as my heart was dropping..."you were gone." oh man! I wanted to make sure that was why so I was asking for his nurse, and he told her the same thing! Poor guy. It would be horrible for me too if I was stuck in a hospital.
Cale worked so hard today. In OT they had this big board that lit up with the lights off. They had Cale try to touch the buttons that would light up (while standing) with his right hand. He is still having so much trouble getting his right hand to do what he wants it to do, but it's definitely getting so much better. There were a few times that he would just quickly do it with his left, but for the most part it was all his right and even though his arm got so tired on the last round, he still made it til the end!
There were a couple funny things in ST. Patty started off with giving Cale some Mt Dew. Everyday he's taking more sips of thin liquid! After, she started asking him questions. One of them she asked what he had eaten for dinner. He couldn't remember so I gave him two choices. "Lasagna or Beef Stew?" Cale said "Beef Stew" yay! Well then after a couple questions, she asked Cale what he had been drinking with her and he said "Beef soda" haha! It was really funny because he said it with such a straight face. I was thinking, if he only knew what he was saying...Later, Patty was pointing to different objects and having Cale say what they were. He usually doesn't do too well at these questions, but it's usually a word we can't understand that comes out rather than something random. Most of the time we can give him two choices and he can get the right answer. Well, she showed him the chap stick "What is this called?" Cale said "a freezer" Oh goodness! That was completely random! I would love to say that it was Cale messing around, but he was truly having a hard time today. One day I know that the two of us will be able to laugh together about all the silly things that have happened!
Pat (PT) came and talked with me today. I missed his pt session, but Pat said that Cale is doing so much better as far as balance, except that he's so afraid of falling that it throws him off. This isn't the only thing that Cale has been saying he's afraid of. Recently, he's been saying that he's afraid of messing up on something or doing something wrong. Yesterday I was working with him trying to write his name and he kept saying "I'm afraid." when I asked why he said "what if I mess up" I would say in every therapy right now, that's something that is coming up. Even in ST with eating, Cale has been afraid to swallow in case it hurts. He's also been saying he's worried. When I ask what he's worried about he says "everything". I've been talking to him a lot, trying to encourage him and let him know that it's ok if he messes up, or doesn't know how to do something. If he tries then that's what helps him get better. The therapists have talked with him too. It just seems to be more constant lately, or at least it feels like it since he's talking more (I still can't believe he's talking!).
I'm praying and asking you to pray with me against the spirit of fear! He does not need to battle fear and worry along with all the physical things he's already having to battle. He belongs to the Creator of the Universe, the King of Kings, the Great I AM, the Alpha and Omega, the Lord of his life!
For God has not given us a spirit of fear and timidity, but of power, love, and self-discipline. 2 Timothy 1:7